Showing posts with label lapatinib. Show all posts
Showing posts with label lapatinib. Show all posts

Friday, 27 February 2015

Going loco

The other day I went out to buy a water filter jug but came home with this instead


Not the world's best picture I'm afraid but who wouldn't want a tin 1950s toy train (plus signal!) on their bathroom skirting board?  The other-half is threatening to paint scenery on the wall behind the train, but I quite fancy the real 3D McCoy that I saw recently in an the window of an old style model shop in York


It would certainly make trips to the loo a bit more interesting.

So yes, I've been to York for a few days.  It has two of my most favourite things - history and shopping.  I had a great time, ate too much, slipped off the Lent no-booze waggon, spent too much money (new red boots and a picture!), went sight-seeing and walked my legs off.  

The glory that is York
I'm absolutely knackered now but it was worth it.  Did I mention new red boots and a picture?

Before we went to York I tried to kill sis no 1.  We went to see the snowdrops I talked about last timeIt was as lovely as usual although a bit on the chilly side


Then we headed off to a pub for Sunday lunch.  We decided to go via the Stiperstones (if you've the misfortune to live somewhere other than Shropshire and have no idea what the Stiperstones is, I'm talking about a big hill)As we drove up and up the weather got colder and colder and snowier and snowier


until we were almost in a white-out


Sis no 1, not a lover of all things wintry, was not impressed.  Anyway, we made it down the other side safe and sound, took refuge in the pub and stuffed ourselves full of grub before driving home, taking a less dramatic route.  I think sis no 1 has just about forgiven me.  Yhe other-half, on the other hand, enjoyed his Ice Road Truckers moment.

Have you notice I've been tinkering with the blog header again?  I'm not sure I like it but a change is as good as a rest.  And in that spirit I decided to experience some spring madness myself and go blonde



I'm not sure about this either as it's a bit too Bet Lynch for my liking



Picture from here
See what I mean

At my most recent hospital appointment I asked the oncologist what chemo options were left for me when the current regime (capecitabine and lapatinib) fails.  I was relieved that there are still two or three options to try but the reality is that nearly all of them would see me lose my hair again.  So I decided to have a bleach blitz while I had the chance.  So, no regrets there.  But no promises that the next post won't see me back as mousy brown and/or with another change in blog header.

While I'm on about all things cancery, my latest blog post for Vita (an online breast cancer charity magazine) can be read here, this month's not particularly happy subject is times when medical staff aren't all they could be, something most have us have experienced at times.  Big sigh.

Wednesday, 18 February 2015

A spring in my step


I'm just back from the oncologist's and am pleased to report that my cancer is stable.  In other words it isn't shrinking but it isn't growing either.  So I will continue on my current treatment, capecitabine and lapatinib, and then have another CT scan in late April to see what my insides are up to.  So, for now, I'm a happy bunny.

And spring time is just around the corner.  There are snowdrops and crocuses and the beginnings of daffodils here in Shropshire.  In fact, any local-to-Shropshie bods, if you'd like to see a kabillion snowdrops in one place and give to a worthy cause then come along to Winsley Hall this weekend (Sat 21st and Sun 22nd Feb) and stroll in the grounds for a fiver and see more snowdrops than you'll know what to do with.  The money goes to the Lingen Davies Cancer Fund.  More info on the snowdrop walk here and on the Lingen Davies Cancer fund here.

In other news I seem to have started a mini debate on Facebook about the correct way to eat a fish finger sandwich.  The correct answer is, of course, with tomato sauce.  I'm already aware, courtesy of the other-half, that some dimwits prefer brown sauce.  In addition to this heresy, it seems some benighted souls think that mayo or tartare sauce are the way to go.  I feel sorry for them all.  But not nearly as sorry as I am for the person who has never tried the gourmet delight that is a fish finger sandwich.  It really goes to show that the old cliche is true, there's always someone worse off than you are.

Tuesday, 10 February 2015

Cancerversary


Three years ago today I was diagnosed with secondary breast cancer.  I believe the average life expectancy for breast cancer patients with metastases to an organ (or organs) is two to three years. So I don't know whether to be delighted or depressed.  I think I'll go for the middle way and settle for my usual frame of mind - discombobulated.

We marked the occasion in the traditional way by going to an oncology appointment only to find that the results of my CT scan haven't been reported yet.  To be fair this doesn't happen all that often and, in this case, we were forewarned.  Anyway, I remain on tenterhooks until I go back next week sometime to hear the results and find out if the current treatment, capecitabine and lapatinib, is working or not.  But just to keep me on my toes I'm also having a (planned) mammogram tomorrow so then I can add worrying about my remaining breast to the mix.

Blimey I sound glum.  I'm not, honest.  In fact on the way home from the hospital we sang 'Happy Cancerversary to you' in both the traditional and Stevie Wonder versions.  I know how to have a good time!

Wednesday, 7 January 2015

Plodding on

I started a new (to me) treatment last month (after the cancer in my lungs had started growing again and also spread into my liver).  As with any medicine this chemo, capecitabine, and biological therapy, lapatinib, come with a huge list of possible side-effects.  And it seems that I am working my sorry way through the whole sodding list.  So far some of the highlights have been itchiness, acne, heartburn, queasiness, diarrhoea and fatigue.  

Thankfully, for the most part, the side-effects have cropped up one or two at a time rather than all at once.  For the past couple of weeks it's been the fatigue that's been the real downer.  I've spent a lot of time lossicking about in bed or on the sofa and have missed out on some planned outings or had to come home early.  So I'm feeling a bit hard done by and sulky.  Fortunately I have a book backlog to get through so being (sort of) housebound has had some compensations.  I have a scan next month so then I'll find out if the treatment is working or not.  If it isn't working and I've been feeling grotty for nothing I will be unbearable, be warned!

Anyway all this sitting about at home being grumpy isn't interesting for anyone. Fortunately Cyril, the three-legged monster cat, is keeping me entertained.  His recent exploits include spending hours who-knows-where and coming home covered in mud,


and when the weather prevents even this intrepid explorer from going outside finding puddles, he polishes his hunting skills.  Here is he chasing elk.


He also fell asleep on a hapless and rather large spider.  When he woke up he was walking around with the horrible (and very dead) eight-legged monstrosity squished on his face.  Fatigue or no I found I was able to run away from him in quite a sprightly fashion.  No pictures, I was too busy standing on a chair screaming, the most exercise I'd had in ages.


Wednesday, 24 December 2014

Itchy Xmas

A whinge to start off with, then I'll put my festive trousers on.

I'm two weeks into my new chemo combo (capecitabine and lapatinib).  I have been fortunate enough not to have had, as yet, any of the yuckier possible side effects (sickness, explosive visits to the loo etc) but I am pretty tired a lot of the time, am incredibly itchy all over and my nose and chin are covered in acne.  I am not impressed.  I've now got ointment, antibiotics and antihistamines so hopefully the skin rebellion will calm down soon.  Weirdly it's the acne that I hate most.  Thinking back, I hated going bald (on a previous chemo) and I hated losing a breast (the mastectomy) but I hate, hate, HATE having a face full of spots.  I suppose my attitude to a relatively minor side effect means I'm either completely barking or a deep and complex person.  Big prizes for the correct answer.

Miserable sods, like myself, who'd like more moaning can see my latest blog for an online breast cancer magazine by clicking hereFor happier souls let's move on to festive frolics.

Something very strange has happened at Discombobulated Towers.  Rather alarmingly the other-half seems to have turned into Kirstie Allsop.

First we had the homemade Christmas wreath

The other half looking uncharacteristically bashful
and here it is in pride of place


So far so good.  But then things started getting a bit bizarre.  He made me a Christmas card.  Aw, touching, I hear you cry.  Hold your horses!  First a little background ... A few weeks ago the other half and I were oohing and ahhing over a cute mouse who was helping itself to food from the bird table and then scurrying back to the safety of it's home (we guessed) under the garden shed.  He saw it a few times after that and commented on what a large, well fed mouse it appeared to be.  Gradually the realisation dawned that the cute little mouse was in fact a big, scary rat.  I say scary because even Cyril (the three-legged monster cat) ran away from it.  Anyway, the other morning I came down to find this Christmas card waiting for me


The other-half, age 49 and a half, had stayed up to two in the morning making this thing of wonder.  It says Happy Ratamas, is partially made out of an old sock and has an illuminated nose.  It also has a lovely stand (not shown) made out of the middle of loo roll.  Truly I am blessed.

I returned the favour and made him a card too.  However, I'm not showing mine because a) it's nowhere near as good as the other half's and b) it features a misplaced apostrophe (oh the shame!)

All of which brings us on to the piece de resistance.  Last Saturday saw the other-half's family Christmas party.  The brief was to wear something Christmassy, cue lots of festive jumpers etc.  The other-half decided to do something different.  He spent a whole afternoon constructing a hat made out of brussel sprouts, fairy lights and a light-up tree.  It involved a great deal of swearing, a lot of electrical tape and made the whole house reek of festering veg.  The completed article, as well as being something to behold, also weighed about two tons.  The other-half's neck is now two inches shorter.  Anyway without further to do, here it is, and a Happy Christmas to all!