Friday, 20 May 2016

To the barricades

Picture from here
I daresay I shouldn't just nick photos from here, there and everywhere on the internet and stick them on this blog, but what do I care, I'm poorly, leave me alone.

Well surprisingly my appointment at the Christie came through a bit roger rapid, after last week's referral from my local hospital, and so yesterday the other-half and I made the trek up to Manchester to see if there were any clinical trials available.

Disconcertingly the doctor we saw was the living spit of Eddie Redmayne.  Somehow I resisted singing him a medley from Les Mis.  I hope you admire my restraint.  Anyway it seems, according to Dr Eddie, that there is a trial which could be just the ticket.  It's a bit similar to the TDM1 (Kadcyla) trial I was on a while back, in that once again a chemo drug is combined with herceptin to try to target the drug to the shitty cells rather than damage normal cells too.  In this case the trial drug is SYD985.  From them as is interested some more info is available here.  

I will have to have several tests to ensure that I meet the drug company's criteria for going on the trial.  In addition to this, tumour samples from my surgery have to be sent to America and I will also have to have a biopsy on the cancer in my lungs.  The new biopsy presents two problems.  Firstly, a biopsy sounds like No Fun At All (but obviously I'd bite the bullet).  Secondly, there needs to be some cancer that is both large enough and near enough to the surface to make a biopsy feasible.  Dr Eddie and a radiologist will be scrutinising my last CT scan to see if a biopsy is a go-er.  If not I won't be able to go on the trialI should hear from Ed on this one by the end of next week.  So fingers crossed.

If I am biopsy-able then that, plus the other tests and sending info to America mean that I won't actually get to start the trial for about six weeks.  This worries me a bit as I feel like my cough and breathlessness are worsening by the minute.  Hopefully, I'm just being a bit of a drama queen on this one. 

So that's where we are at the moment.  In limbo land really.  But things are moving along I suppose.  To keep my spirits up I'm stomping about the house singing this.  Feel free to join in. 


  1. That's encouraging news - good luck and keep singing!

    1. Thank you. Am also thinking of getting a big flag to wave about.